as mentioned in our livestream with the diamond blackfan anemia foundation

you will be receiving an update form in the mail from the registry

(if YOU DO NOT RECEIVE THIS FORM IN THE MAIL, please CLICK THE LINK BELOW)

 

 

 

  

MAIL

The Feinstein Institute for
Medical Research

350 Community Drive

Manhasset, NY 11030

FAX

516-562-1599

EMAIL

Maryam Hussain

mhussain9@northwell.edu

Maria Florento

mflorento@northwell.edu

return completed forms via

OR

OR