as mentioned in our livestream with the diamond blackfan anemia foundation
you will be receiving an update form in the mail from the registry
(if YOU DO NOT RECEIVE THIS FORM IN THE MAIL, please CLICK THE LINK BELOW)
The Feinstein Institutes for
Medical Research
350 Community Drive
Manhasset, NY 11030
FAX
516-562-1599
Maryam Hussain
Maria Florento